We have a diagnosis "pervasive developmental disorder". Finally we have something, and now we are taking it one step at a time. Where he is on the austism spectrum will be in the next set of tests. We are on everyones waiting list. Please pray we find information as soon as possible! He is 5 now and I so wished that the DR's and others had listened to me all along that Elliott needed help. I wish I had fought harder for him. But there is nothing I can do about it now, except refuse to take 'no' for an answer and I will be knocking on and knocking down any doors and walls that get in the way! I have a new support group in place with local moms from the NC Autism Society. They are helping to provide all the information, resources, and are being great advocates for us!
Fighting his IEP, since they do not want to change his current one now that he has a diagnosis. We are not sending him to public school in the fall, and we are fighting to get him services while he is in a private Montessori kindergarten class. I feel in my gut that it will be better for him to have one year of therapies and a "trial" kindergarten while we await the school to provide an appropriate IEP and not let Elliott be a "learn as they go along" kind of student.
I may not be online much in the coming days, there is so much still do and that is my main priority right now! Just wanted to let you all know and any support, prayers, etc. will be appreciated!
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